An eleven year old was removed from his Middle School because he carries the genetic mutations for cystic fibrosis. This isn’t being done to protect his health, but rather, the health of other students who have cystic fibrosis. There are other options that the school board could have taken before removing the boy from his school. This is a strange story. An eleven year old boy was attending Jordan Middle School in Palo Alto, California. He carries the genetic mutations for cystic fibrosis. However, he doesn’t actually have the disease. He is healthy, and has none of the symptoms that … Continue reading →

The Food and Drug Administration has approved of the use of a drug called Afinitor Disperz. The FDA has approved it specifically for the use of treating brain tumors in young children who have a rare genetic disease. The drug was cleared under the FDA’s accelerated approval program. Earlier this year, the Food and Drug Administration (FDA) approved a drug called Kalydeco. That was the first drug that the FDA has approved that was designed to help treat the cause of cystic fibrosis. Kalydeco was specifically approved for people who have cystic fibrosis and who are age six or older. … Continue reading →